Posts Tagged ‘capitalism’

Kender needs help

Some of us who’ve been around for a while know Kender’s story, but let me share a little bit about what I know that makes this bleg urgent.

He’s caught in the system; having had a problem with his kidneys since he was a little boy. He is smaller because he went through those health problems as a child, and today, he can’t make too much money – because if he does, he has to forego the much-needed government benefits he needs to survive and get his life-saving medical treatments. Without dialysis, he would die.

His last kidney transplant failed. He has so far had two of them, as far as I know.

That part pretty much sucks, but he pretty much takes it all in stride. I find that amazing; I am constantly amazed by Kender’s unfailing resolve.

He did have a moment recently when he hit a low and said he was going to suspend treatments, that he saw no hope of going on, that he was going to write a note to his son, and just shrivel up and die….but that was short-lived.

You can understand how someone who lives with this condition every day might have a low day now and then; even healthy people with no problems go through that.

Now, his ‘significant other’ relationship is over, and he finds himself without a home. He had a pretty nice set up with her, he had a home dialysis machine and she was his assistant backup in case something went wrong in the process; which can happen sometimes. Sometimes the patient passes out; but any number of things can happen in the process of putting in the needles, etc.. But the main point is, when he’s doing his own dialysis at home, he’s not at the mercy of the ‘unit’s’ schedule, and he feels better; not to mention the fact that he doesn’t have to find transportation to and from the unit.

At any rate, this lady still has his dialysis machine. He moved in with someone temporarily, but needs to get back there to collect his belongings, but more importantly, get his dialysis machine, and he needs his own place to live, which is another expense that is much more expensive up front, but will be manageable once he pays those up front expenses.

All of these things take money, and he has no vehicle, which is another factor which is going to prevent him from doing what he needs to do.

Now, we have had a generous offer out of Florida where a woman is willing to give her motor home to Kender, if we can find a way to get it to California. So we’re working on several ideas to get it from Florida to California; one of which is an old-fashioned daisy chain.

We have an offer to help out from Alabama, and another from Dallas, Texas, and Kender’s dad is in Arkansas – and he’s willing to pitch in. The motor home will take about a quart of oil a day traveling that far, and I’m not sure about gas mileage, but these are all things that will cost – but it’s the cheapest route to get it to where it needs to go.

Updated: more stops

Updated stops…

See the preliminary map and stops, here.

So take a look at the map and let’s see if we can get that vehicle over to him. Insurance and tags are paid for and the transfer will happen once it’s in California, which was also very trusting and generous of the owner.

He needs some cash – to put some of his stuff in storage, to raise money for his new place, and a number of things that I’ve already mentioned, and he is between a rock and a hard place as far as being able to do it for himself, and that’s where you come in. Please contribute whatever you can; time is of the essence here; he needs to get his stuff; particularly his dialysis machine.

Kender’s plan is to get on his own two feet so he can move forward from here. Every now and then it helps to get a leg up.

So please go to his website and donate what you can.

Click on Kender’s Musings and donate through the paypal button in the left hand sidebar.

Update: Kender tells me that being tethered to a unit’s schedule robs him of his freedom, and he doesn’t feel as good when he goes through their dialysis procedure as when he does it at home.

being back in a unit has proven I don’t feel as good on a machine in center
and mentally I cannot lose my freedom again
and frankly I simply must find a way to make this work or I will lose my machine and I am not sure that I can handle that again….
and if every person who stopped by just left 5 bucks we would be doing ok

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‘Do you know who I am? I’m a big star, and I can look you up … blow you up’

It must be something they learn in “How to behave like a celebrity 101”; how to behave like a jerk. He attacked Courtney Scott, a student intern working as a reporter for the Savannah Morning News, with the above sentence in response to a simple question. Williams is promoting Partnership for Prescriptive Assistance’s Help is Here Express, which claims to have helped 4.5 million people get their prescriptions for free or close to that. Williams is their spokesman, who suffers from MS. He asked her if she suffered from any disease, and she answered “no”.

The question that ticked him off, was

“Do you think pharmaceutical companies would be discouraged from research and development if their profits were restricted?”

He responded angrily with:

“I’m here as a patient advocate talking about the fact that medications available today are saving people’s lives, that’s what saving mine and after that, this interview is done.”

Then he snapped his fingers, said “thanks” and terminated the interview.

Afterwards, Scott and two of her colleagues went into the Westin to do a story on gingerbread houses that were exhibited there. Montel approached them with his body guard, still incensed. Getting into Courtney’s face, pointing his finger, he said:

‘Don’t look at me like that. Do you know who I am? I’m a big star, and I can look you up, find where you live and blow you up.'”

At that point he was pointing his finger at all of them. He may have overreacted, but you will seldom see someone turn around and do what he’s done to ‘fix’ things.

Williams released a statement offering an apology and an invitation to his television program.

“I am really saddened by the incident that took place yesterday after such a glorious visit to Savannah to help patients in need. A series of unrelated personal events, including the highs and lows of my daily battle with MS, caused me to overreact to this situation.

However, I am not using that as an excuse for my behavior and I accept full accountability for my actions. Regrettably, I reacted childishly to the situation and for that I truly apologize to all concerned. I would like to invite Courtney and her family to appear on my show for a public apology.”

It was a reasonable question she asked…you have to wonder why he responded in the way that he did to a young lady. He should still answer the question, even if he used his disease as an excuse to behave badly and now makes a big production out of apologizing for it. It might be a ploy to get more attention on the pharmaceutical organization he represents.

I’d like to know how that organization gets medicine for people for free. We’re not a socialist form of government and he do not have national healthcare. So what’s the catch and how do they undercut the pharmaceutical companies? Won’t that cause damage down the road, just like Canadians selling American-made medicines back to Americans for a profit? America is footing the bill for part of their National Healthcare program by giving Canada Medicines under cost. No business can survive very long, doing that. The reason drugs are expensive here is because we are the only country in the world that develops new ones. That’s called Research and Development, which costs money. That is part of what’s embedded in the cost of medications and drugs here.

It’s unfortunate that people who want everything for ‘free’ only think of themselves. I don’t agree with someone traveling the country helping people to beat the system.

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